I’m home. I’m home. I’m home. Gregory is too. So is the rest of the family.
We were cut loose about 12:30, today. When you finally get the all clear, I tell you, you cannot get out of there fast enough. It seemed like the elevators took forever and there was a huge wait, to pick up his RX. We finally left about 1:30. I was able to say good bye to a few people, but we haven’t been inpatient much, so there was not many that really knew us. I meant to say bye to you, too, Jess. I just wanted to get home. Walking into the house today was different from the other times. I’ve made my peace with this part of the Odyssey and it just felt safe to be here. One thing I do need to remember is this: Upon coming home from an admit, let the other stuff slide for an hour or so. Go grab Gregory and cuddle on the couch together. For at lest an hour. Re-set yourselves. Make like broccoli and veg.
Curtis and AnnMarie got home not long after we did. Curtis almost started crying when he saw me. He gave me the biggest hug. One of those really long and comforting kind. He did not leave my side for about an hour after they got home. AnnMarie squeezed me, then we all cuddled together on the couch. At one point, Curtis was on my right, AnnMarie was on my left and Gregory was in my lap. It was an OffSpring blanket.
Everything is a go for Seattle. Gregory came home with an RX for Zithromax. His 6MP (low dose chemo) has been discontinued. According to Dr R, his numbers are where we want them and he does not want him any more compromised than he already is, going into this. Especially with the surgery for his Central Line. There was further talk about his spleen, today. Apparantly his platelets are staying fairly stable due to his spleen. Not quite sure what that means. I have a whole list of questions for The Hutch team. Team it is, too. Afterall, it is primarily a research facility. We will have a new doc every month of our stay. They each spend a months rotation at the hospital. The balance ot their time is at the research center. I’m prepared to have a whole crew of people to get to know.
I’ve got the sleeves attached to the body of AnnMarie’s sweater. I’m working on the shoulders, now. I’m pretty sure she will have a sweater to wear to school on Monday. Note to self: When washing a washable hand-knit item, especially when the quality of the yarn is not so good (actually ALL the time, for safe measure), turn the blasted thing INDSIDE OUT! I washed Gregory’s sweater and it is super fuzzy, now. It was my first sweater, I wasn’t sure how it would turn out and I didn’t think the size would fit for very long. Therefore I used a mid-quality yarn. It has acrylic in it. If I’m going to spend that much time making an item, I want it to last and at least look semi decent. While it’s not terrible looking, I know it could look better. I knew I would be making another one for him, I just didn’t think it would be on my radar so early. I would like the next one to be oranges, reds and yellows. Yes, I think about knitting constantly. I’m trying to scale down the amount of yarn that I will be taking with me, but I just don’t see that happening. After all, what if?
Tick tock, tick tock. Time keeps on slippin’…….
Thank you’s for today:
Jess ~ Thanks for fullfilling my frantic request for scrap yarn!! Question: Did that ball come wound like that or did you wind it that way? If you wound it that way ~ Cool!
Peds Onc Clinic, Ped Onc, Candlelighters, Child Life Specialists, Sacred Heart employees in general ~ Thank you for making the first part of our Odyssey so pleasant, warm, joyful and inclusive. We will be changed people, the next time you see us. Watch out. We are warriors. Roar with us.
Dr R ~ Here’s a cliche for you. There are no words to express the depth of what I have to express to you. I know you get it, so I will leave it at this. Thank you. You lead a mean tribe. Looking forward to seeing the gleam in your eyes, upon our return.