What a day. First things, first. Gregory had a bath! Clean sheets. Dressing changed on his central line. Yeah!
Today he had a big blood draw. They are completing further genetic testing to doubly confirm the diagnosis that Dr Reynolds is pretty darn sure we are up against. Juvenile Myelomonocytic Leukemia. Treatment for this requires a Bone Marrow (Stem Cell) Transplantation. Larry and I and the OffSpring are going to be tested for matches within the next 48 hours. Please cross your fingers, do a little shimmy and pay homage to whatever deity you like. We need some good juju.
Gregory gets to participate in what they call Little Wishes. Every two weeks that he is hospitalized he gets a little wish granted. He received his first one, today. He got a little cash register, a super plush frog backpack, some tub toys and wooden blocks. We now have a toy “drawer” for him here in the room. We had a chance to move his play from the bed to the floor, too. It felt really good. His appetite has been down and he didn’t eat much today. He also has been having an elevated temp in the evenings. Nothing serious, just something to keep our eyes on. His WBC (White Blood Count), RBC (Red Blood Count) and his Platelets all went in the wrong direction between yesterday and today. Not bad enough to require transfusion, just enough to make me nervous.
I’m not sure on the timeline, yet, for the next step. Currently, it’s moment to moment.
Larry is working his butt off, keeping everything as normal as possible for the other OffSpring. I can’t imagine what he is going through. Thanks to everyone who is offering support and a helping hand.